Wednesday, May 9, 2012

Perfect Chorus

The ten hour ordeal yesterday was worth every trying  minute - fighting traffic among those emulating Jeff Gordon, dodging gores that double-dog dared me to cross them, following written directions to Emory Clinic when my love language does not include the words north, south, east or west. Not to mention that my relationship with the On Star lady became somewhat strained  because her expert guidance was not sought. Nonetheless, the effort and time involved produced an answer to prayer.

We have a diagnosis. * (see below)

While not common, the two  Neuro Opthalmologists  who examined Chase yesterday were familiar with the unusual symptoms he presented.  After a four hour exam, not only did we learn the name of  Chase’s condition, we discovered that we are closer to using this diagnosis in a past tense term rather than one in the present. After almost seven weeks, Chase is on the other side of recuperation, meaning that he has hopefully experienced the worst that could occur. The prognosis given at the end of our exam included an expectation of full recovery by the Fall of this year, beautiful music to the ears of a weary mom who has been missing her song.

I cannot think of a sentence that has brought more joy than that confident conclusion.  The nameless was identified, the indefinite turned to well defined , and the unfamiliar became a known.  The overwhelming relief I felt almost caused me to collapse in a puddle of emotion  in that exam room, yet  I fought for control and chose to chest bump the small, French physician instead.

(Not really. But the thought of doing so prevented the flood of tears, the likes of which I am sure even Noah has never seen.)

Sitting on the porch with my husband last night, we revisited the events of the day, savoring the information we had been given, the long awaited answers to questions that had so troubled us. We spoke of being thankful for the many that had prayed for our son, knowing without a doubt that it was the reason our day had ended well.

“I imagine the multitude of prayers lifted as a beautiful symphony, presented in reverence to the Great Conductor ,” John said quietly.  “While the prayers of one or several produces a pleasing melody -  like a trio of flutes or an ensemble  of violins - it is when you add all the other instruments  together - the trumpets, the clarinets, the trombones – that a magnificent orchestra  is constructed. Those many prayers, all those lifted by our family, friends and people we will never know, created exquisite music in the ears of God, a heavenly symphony of confident believers praying with perfect pitch and tune.”

Thank you for being our chorus, for lifting a flawless concert to the Almighty on the behalf of our son, Chase.  Whether you claim the soothing tones of the flute, the steady sound of the trumpet or the boldness of the cymbals, your participation in the symphony written for our family will always be remembered and  treasured, but most importantly, forever hummed.

To God be the glory.

Cerebellar Ataxia
(source - Mayo Clinic)
Damage, degeneration or loss of nerve cells in the part of your brain that controls muscle coordination (cerebellum), results in loss of coordination or ataxia. Your cerebellum comprises two pingpong-ball-sized portions of folded tissue situated at the base of your brain near your brainstem. The right side of your cerebellum controls coordination on the right side of your body; the left side of your cerebellum controls coordination on the left side of your body.
Diseases that damage the spinal cord and peripheral nerves that connect your cerebellum to your muscles also may cause ataxia. Ataxia causes include:
  • Head trauma. Damage to your brain or spinal cord from a blow to your head, such as might occur in a car accident, can cause sudden-onset ataxia, also known as acute cerebellar ataxia.

 A very good descriptive example video can be seen on youtube at

(source - Canadian Movement group)


Fletcher- High Cotton Style said...

That is so great Joni! Continuing to pray!

Gail said...

Joni - So glad to hear you now have answers! I will continue to pray for you, Chase and your entire family.

Annapolis, MD

minnemie said...

What a beautiful description of prayer! Praising Jesus with you for naming the unknown and for hope confirmed!

Amber Hanshaw said...

Praise the Lord for hope!

JMom said...

I am just catching up! So incredibly thankful you have answers!!!!!!!! Praising God with you!!!!

Anonymous said...

When I read that you have a diagnosis, the song I'm Trading My Sorrows popped into my head. I looked up the lyrics and thought they were fitting, especially this part: ;)

I'm pressed but not crushed persecuted not abandoned
Struck down but not destroyed
I'm blessed beyond the curse for His promise will endure
And His joy's gonna be my strength

Though the sorrow may last for the night
His joy comes with the morning
Father God,
Thank you for Chase's favorable outcome. Thank you for carrying him through this time. May this experience be used for good in his life. In Jesus name we pray. Amen

Longview, TX