The ten hour ordeal yesterday was worth every trying minute - fighting traffic among those emulating
Jeff Gordon, dodging gores that double-dog dared me to cross them, following
written directions to Emory Clinic when my love language does not include the
words north, south, east or west. Not to mention that my relationship with the
On Star lady became somewhat strained because her expert guidance was not sought. Nonetheless,
the effort and time involved produced an answer to prayer.
We have a diagnosis. * (see below)
While not common, the two Neuro Opthalmologists who examined Chase yesterday were familiar
with the unusual symptoms he presented. After a four hour exam, not only did we learn the
name of Chase’s condition, we discovered
that we are closer to using this diagnosis in a past tense term rather than one in
the present. After almost seven weeks, Chase is on the other side of recuperation,
meaning that he has hopefully experienced the worst that could occur. The
prognosis given at the end of our exam included an expectation of full recovery
by the Fall of this year, beautiful music to the ears of a weary mom who has
been missing her song.
I cannot think of a sentence that has brought more joy than that confident
conclusion. The nameless was identified, the indefinite turned to well defined , and the
unfamiliar became a known. The
overwhelming relief I felt almost caused me to collapse in a puddle of emotion in that exam room, yet I fought for control and chose to chest bump
the small, French physician instead.
(Not really. But the thought of doing so prevented the flood
of tears, the likes of which I am sure even Noah has never seen.)
Sitting on the porch with my husband last night, we
revisited the events of the day, savoring the information we had been given,
the long awaited answers to questions that had so troubled us. We spoke of being
thankful for the many that had prayed for our son, knowing without a doubt that
it was the reason our day had ended well.
“I imagine the multitude of prayers lifted as a beautiful
symphony, presented in reverence to the Great Conductor ,” John said quietly. “While the prayers of one or several produces
a pleasing melody - like a trio of
flutes or an ensemble of violins - it is
when you add all the other instruments together
- the trumpets, the clarinets, the trombones – that a magnificent orchestra is constructed. Those many prayers, all those lifted
by our family, friends and people we will never know, created exquisite music
in the ears of God, a heavenly symphony of
confident believers praying with perfect
pitch and tune.”
Thank you for being our chorus, for lifting a flawless concert
to the Almighty on the behalf of our son, Chase. Whether you claim the soothing tones of the
flute, the steady sound of the trumpet or the boldness of the cymbals, your
participation in the symphony written for our family will always be remembered and treasured, but most importantly, forever hummed.
To God be the glory.
Cerebellar Ataxia
(source - Mayo Clinic)
Damage, degeneration or loss of nerve cells in the part of your brain that controls muscle coordination (cerebellum), results in loss of coordination or ataxia. Your cerebellum comprises two pingpong-ball-sized portions of folded tissue situated at the base of your brain near your brainstem. The right side of your cerebellum controls coordination on the right side of your body; the left side of your cerebellum controls coordination on the left side of your body.
Diseases that damage the spinal cord and peripheral nerves that connect your cerebellum to your muscles also may cause ataxia. Ataxia causes include:
- Head trauma. Damage to your brain or spinal cord from a blow to your head, such as might occur in a car accident, can cause sudden-onset ataxia, also known as acute cerebellar ataxia.
A very good descriptive example video can be seen on youtube at www.youtube.com/watch?v=amJQoPGq71o&feature=related
(source - Canadian Movement group)
6 comments:
That is so great Joni! Continuing to pray!
Joni - So glad to hear you now have answers! I will continue to pray for you, Chase and your entire family.
Gail
Annapolis, MD
What a beautiful description of prayer! Praising Jesus with you for naming the unknown and for hope confirmed!
Praise the Lord for hope!
I am just catching up! So incredibly thankful you have answers!!!!!!!! Praising God with you!!!!
When I read that you have a diagnosis, the song I'm Trading My Sorrows popped into my head. I looked up the lyrics and thought they were fitting, especially this part: ;)
I'm pressed but not crushed persecuted not abandoned
Struck down but not destroyed
I'm blessed beyond the curse for His promise will endure
And His joy's gonna be my strength
Though the sorrow may last for the night
His joy comes with the morning
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Father God,
Thank you for Chase's favorable outcome. Thank you for carrying him through this time. May this experience be used for good in his life. In Jesus name we pray. Amen
Cheryl
Longview, TX
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